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Archive for the ‘Events’ Category

Thank you, Dr. Marvin!

Jennifer and I just had the great opportunity to share our ALS journey on Dr. Norman Marvin’s weekly conference call this evening.  Dr. Marvin’s is a medical doctor with a doctorate in pharmacology as well. His biography can be found at www.DocMarvin.com.

I have had some incredible results with the discovery of a pathway called Nrf2.  We discuss our journey and experience with a Nrf2 activator on Dr. Marvin’s call.  Archived calls can be accessed by calling 1-559-546-1799 Access Code 200765#.  Then choose Reference Number 4 and then #.  I apologize, but Doc Marvin’s call is no longer available.

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Team Bishop 2130 Ride for ALS

As part of our four part mission, we will be leading a 21.30 mile bike ride to commemorate Lou Gehrig’s 2130 consecutive baseball games played before he succumbed to ALS in the glory days of his career.  He was only 35 when he was diagnosed and died two years later.  The ALS Therapy Development Institute is the beneficiary of the funds raised for this bike ride.  This event will raise awareness, funds and hope for those affected by ALS.  Please click on our Team Bishop sponsor site now to ride, volunteer or donate.

Knowing that organizations such as ALSTDI are working on a treatment and/or cure for ALS provides hope to those affected by ALS.  I remember when I was first diagnosed and reading everything I could about the disease, I took comfort knowing someone was working on it.  I was not alone.  People cared.

Knowing that I have such a slow progression, I feel even stronger that a treatment or cure could be found in my lifetime.  I also know that even those with a normal progression of ALS want to raise money so no one else has to go through this horrible disease.

Will you provide hope by becoming involved with our 2130 Ride for ALS?

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Angels for ALS Gala 2008

We have many challenging and exciting decisions to make this fall.  As a nation, we will elect a new president, and whomever we choose will be a first in our nation’s history.  As a community committed to the Extra Hands mission, we have begun to pursue strategic partnerships which will enable us to reach more PALS and their families as well as to serve others who are homebound and need support.  Currently, we simply do not have the resources to offer the program beyond the ALS community by ourselves, much less keep pace with the ballooning demand for it within the ALS community across the country.

As you may know, the Angels for ALS Gala will not take place this fall as our efforts are focused on exploring all the possibilities and making the best decision for the next stage of our growth.  Many of you were planning on contributing to the gala and we hope that you will still consider investing in Extra Hands so our potential partners fully witness the passion and commitment of our patrons.  Please click here to contribute securely online.

Once we come to terms with the right partner, we will resume the planning for the gala which allows us to honor the pioneers like you who always ‘believed’ as well as to celebrate the beginning of a new chapter for Extra Hands.

Thank you for your continued support of Extra Hands for ALS!

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One month has blazed by since the Angels for ALS Gala 2007.  Time seems surreal to me, knowing I am outliving ALS expectations.  It also confirms that time appears to accelerate the older we get!

The evening was a very elegant and classic event.  It was an enchanting site to see everyone dressed to the nines at a beautiful venue with a common purpose in mind.  The silent auction area was bedazzled with lights, music, conversation and excitement.

Inside the dining room, 250 seats beckoned for company as the tables dazzled in their simplicity.  Black linens topped with red accents and white china glowed in the soft light of votive candles, highlighting the red cyclamen in the center.

Introductions and welcoming ensued before the theme of the evening was revealed.  Addie, one of our overachieving student volunteers, was impacted by the statistic that every 90 minutes an ALS patient is diagnosed and another one dies.  She produced a video simply asking what everyday people might do in 90 minutes.  As a 90 minute hourglass was overturned, Addie challenged the audience, asking what they could do in the next 90 minutes to make a difference in the ALS community.

After a scrumptious dinner topped off by a decadent flourless chocolate tort, Addie returned to the podium.  She addressed the audience by describing her transformation from the year before.  The patient her Extra Hands team was assisting had died this past summer.  The reality of ALS overwhelmed her.  In her grief, she had grown and become even more dedicated and motivated to make a difference.  By sharing her story, everyone in the audience understood what Extra Hands for ALS is all about.

Thereafter, local musician, Jeff King, mesmerized us with the song, “Angels Among Us,” to solidify our purpose in gathering.  Between Addie and Jeff, tears of sadness and joy were commonplace, reflecting the evening’s momentous impact on all who attended.

The live auction changed the reflective mood into one of excitement and anticipation.  Over $15,000 was raised as top notch destinations, LASIK surgery, beautiful fused glass artistry, music composition and a concert were auctioned off.

One of the highlights of the evening for us was to be able to recognize the many volunteers that make Extra Hands for ALS possible.  First, the outstanding student, mentor and family were acknowledged for the profound impact they are having on other people’s lives.  Then, all the students and mentors in attendance stood after their names were called.  As the audience understood just how many volunteers there were, a standing ovation erupted.  We are so incredibly proud of the people that choose to volunteer their time to make a difference in the ALS community.

The evening was topped off by dancing, mingling and picture taking.

Thank you so much to the gala committee that made the evening possible.  We met for weeks on end before the gala to plan, prepare and execute.  It’s difficult to imagine doing this event without the help of such selfless and caring people.

The generous support of many in kind donations that reduced our overall costs is extremely appreciated.  Especially, Signal Graphics, located at 1777 Larimer Street and Gourmet Fine Catering at 2601 Blake Street, Suite 105.  There were many others, but these two went above and beyond anything we could have hoped for.  Please patronize these businesses to help a show our gratitude.

Also, thank you to all the attendees and donors; from the table sponsors to the individuals and last but not least, our incredible volunteers.  Your generosity raised over $81,000 in support of Extra Hands for ALS and ALS TDI, our research partner.

It is never too late to contribute, so please follow this Angels for ALS Gala link to securely donate by credit card if you have not already done so.  Please make any checks payable to:

Extra Hands for ALS

c/o Steven & Jennifer Bishop

8237 Swadley Court

Arvada, CO 80005

We ordered too many Angels for ALS Gala 2007 champagne glasses and are selling them for $10 each.  We have approximately 80 left and they are not raising any money in our basement!  Lindsey, our outstanding student award recipient, designed and makes ALS Bracelets with the Extra Hands for ALS motto, BELIEVE in them. They come in S, M and L selling for $20 each.   Please specify quantities  with your check and provide contact information so we can get either/both or multiple items to you.

One last enormous thank you goes out to everyone who participated in the 2007 Angels for ALS Gala.

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No Suit? No Problem!

Mister Neat’s partners with Angels for ALS Gala again!

Just in time, we have partnered with Mister Neat’s Formalwear to outfit the black tie optional Angels for ALS Gala.  They have generously offered a $40 discount on all Designer Tuxedo’s starting at $99.95 and up for this event.  Simply mention our event name to receive the discount.  Visit their website at www.misterneats.com or call 1-888-NICE-TUX (1-888-642-3889) for a location near you.  Simply download the Mister Neat’s Flyer here, print it out and bring it with you.

 

If you are coming in from out of town, Mister Neat’s is affiliated with Savvi Formalwear & Friar Tux.  You can go to any of their locations to be measured.  Then simply call 303-980-5999, the Mister Neat’s store closest to the Belmar Center and provide your information.

How often do you allow yourself to get completely dressed up and have the chance to document the occasion?  Bring your cameras, but we will be taking pictures, too!

 

Mister Neat’s respectfully asks that you try to come in four days prior to the event for the best choices and time for fitting.  That would be October 9th for us, so don’t delay.

 

If you haven’t registered for the Gala yet, click here to RSVP or donate.  Thank you.

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Is your RSVP in?

Hi everyone,

We have been planning for months and the Angels for ALS Gala benefiting Extra Hands for ALS is less than two weeks away.  We will be ready for an incredible event!  The RSVP date was Friday, September 28th and due to our new electronic format, the online registration form closed the guest list completely.  Oops!!!  I didn’t know that was going to happen.

If you were planning on attending and attempted to register online, please try again as I have changed the RSVP date to October 7th.  That is the drop dead date for the caterer to know how many meals to prepare?  You still have the opportunity, convenience and security of online registration.

I apologize for the confusion this may have caused and please forward this email to anyone you know that was considering the Angels for ALS Gala!

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Noodles & Company Update

In regard to the previous posting about Noodles & Company, we are honored to announce that $418.51 was raised on August 21st to benefit Extra Hands for ALS.  Thank you to the many satisfied diners and the generosity of the folks at Noodles & Company who donated 20% of their gross sales that evening.  This is the restaurant located at 12023 East Arapahoe Road at Peoria in Centennial, Colorado.

Every once in a while we find a gem of a company in our locale that is community oriented.  Please help us in showing our gratitude by patronizing this location.  The food is great and you will feel good supporting a local business that cares.

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